labyrinthitis, anyone alse has this truelly awful problem?

labyrinthitis, anyone alse has this truelly awful problem?

by dragonxninjaxpowa on 09-18-2008 12:20 pm

labyrinthitis (balance disorder) , that i keep getting most of the time.

i get extremelly dizzy with it, so dizzy i have to lay down or i feel nauseous and very spaced out. also my balance gets affected and i walk like i'm very drunk or like bouncing when i walk.
plus my vision goes all dream like/surreal/trippy/extremelly spaced out when i have it.
and i sometimes get terrible fatigue and lethargy with it, where i don't feel like doing anything and lack energy to do anything.
also mild earache on my left side...
and can only lie on my back or left side in bed. lying on my left side makes me the less dizzy.

sometimes it lasts hours, sometimes days, occassionally weeks. but always keeps coming back randomly
and had this shittttttttt since 2005 when i had a severe inner ear infection and had it for 8 weeks of this hell.
but strangely enough i've had much more frequent labyrinthitis attacks this year.

the doctors are fucking useless all they give me is prochlorperazine which makes me less dizzy and kills the nausea off. but i can't drink on that medicine, and not sure if it's good to be on that most of the time.
wish the bastard doctors would refer me to an ear nose and throat specialist to have it investigated properly, i hateeeeee the useless NHS pricks and their slow waiting times too.

anyone suffer with this shit? it's extremelly stressfull and horrible to have and as i get it so much nowadays, my life is starting to suck.

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by RestriCKted on 09-18-2008 5:14 pm

Wow..That sucks dude.
You have to have a doctor reccomedation for an ENaT doctor? Haha..I just walk in to the Dr. and schedule an apointment.
Birds of a feather; screw the middle class all together.



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RE: labyrinthitis, anyone alse has this truelly awful proble

by BlackCat on 09-18-2008 7:17 pm

Yeah...I'd just find a good Ear nose and throat (mouth) doctor....and make an appointment.
After all..this sounds pretty tough. And even if they can't help you, it's worth a try.
Hope you get better!

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RE: labyrinthitis, anyone alse has this truelly awful proble

by kerryDETH on 09-18-2008 7:47 pm

My mum has it.. shes had it for a few years now... its such a horrible illness.
Sucks that you have it..
for my mum it just comes and goes randomly as for how long it lasts n such.. seems to be brought on by stress from what ive seen..

Even so, i dont know if there is anything they can do about other than some drug.. if you find something out please say; im sure my mum would be interested Smile

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by dragonxninjaxpowa on 09-18-2008 8:56 pm

thx for the kind words... =)

will have to keep trying my best to get it sorted out, if it means changing doctors surgery, i'll do that.

also i got suspected epilepsy which adds to me feeling awful. which is random too.
but is not like classic epilepsy, i don't go unconscious with it. and only my upper body and head violently jerks when i have it , as well as other symptoms.
had an MRI, EEG and blood test and waiting the results of that now...

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by KittensKill on 09-18-2008 10:13 pm

Try other Doctors, sometimes you've gotta keep going to different ones until you get results.

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by kerryDETH on 09-19-2008 9:13 am

dragonxninjaxpowa wrote: thx for the kind words... =)

will have to keep trying my best to get it sorted out, if it means changing doctors surgery, i'll do that.

also i got suspected epilepsy which adds to me feeling awful. which is random too.
but is not like classic epilepsy, i don't go unconscious with it. and only my upper body and head violently jerks when i have it , as well as other symptoms.
had an MRI, EEG and blood test and waiting the results of that now...


epilepsy as well?
=[
Thats not nice.. my brother has epilepsy, hes 22 and hes just gone on medication for it.. these days it doesnt make you into a mindless zombie like the old ones did.. so at least theirs something they can do about that..

As kittenskill says.. your doctor might be completely useless? trying someone else cant hurt =]

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by dragonxninjaxpowa on 09-24-2008 9:57 pm

kerryDETH wrote:
dragonxninjaxpowa wrote: thx for the kind words... =)

will have to keep trying my best to get it sorted out, if it means changing doctors surgery, i'll do that.

also i got suspected epilepsy which adds to me feeling awful. which is random too.
but is not like classic epilepsy, i don't go unconscious with it. and only my upper body and head violently jerks when i have it , as well as other symptoms.
had an MRI, EEG and blood test and waiting the results of that now...


epilepsy as well?
=[
Thats not nice.. my brother has epilepsy, hes 22 and hes just gone on medication for it.. these days it doesnt make you into a mindless zombie like the old ones did.. so at least theirs something they can do about that..

As kittenskill says.. your doctor might be completely useless? trying someone else cant hurt =]


still don't know if i have epilepsy or not..... Crying or Very sad on monday i had 5 seizures, one after the other and had to go into hospital by ambulance.... they think that i got complex partial seizures from the symptoms i have.
and have been put on 300mg of Epilim (sodium valproate) twice daily just to be safe, so i hope that sorts it out.... Crying or Very sad
but the MRI results came back normal, still waiting on the EEG and blood test results.

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by xoPulmonaryxArcherox on 09-24-2008 10:26 pm

I think I've got a mild form of this. When I stand up, I get like, superfucked vision, almost like a tunnel. The edges are like, fuzzy purple-y. Then I get hit with a feeling of almost vertigo and my legs buckle. Sometimes I pass out too. I had scans and stuff, and they said I'm normal.

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RE: labyrinthitis, anyone alse has this truelly awful proble

by PunkRockAngel4Life on 09-28-2008 1:33 pm

That sucks, I'm sorry

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by infinitesilence on 09-28-2008 2:05 pm

I get dizzy a lot of the times.
But that's 'cause I have low blood pressure.
But still, I understand what you're going through.
I'm sorry. :\
I'm sorry I met you darling,
I'm sorry I met you.
As she turned into the night, all he had were the words,
I'm sorry I met you darling,
I'm sorry I left you.

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